Wow, it has been a long time since I posted!  Mikie is doing great!

We still have not changed out his feeding tube.  The doc was supposed to call us back a few weeks ago with an appointment at the GI lab at Richland but I think he forgot us.  The old one developed a little split but we cut about a half inch of tubing off and it works fine.  It it ain't broke, don't fix it, I think that is what the doc said.

Mikie still has not been able to go back to Hope Bridge as he still gets easily agitated in his wheel chair.  Sometimes we can put him in it and he will sit for several hours with no problems. Other times he acts like he ready to get out after being in it for just a few minutes.  So we keep him at home, and we take him next door to Rich and Nora's (and Richelle's) house on Saturdays and Sundays while we go to the flea market.

Following are some details that I put here just so I have a written record in case of an emergency. I was telling someone earlier that one reason Lorraine doesn’t ride the motorcycle with me is because I think it is risky for both of us to be on the bike at the same time.  If we both were to be killed or seriously injured it might be difficult for someone to step in and care for Mikie.  Well, that holds true for more than the motorcycle, so here are his current doses of medicine.

Morning (7 AM)

1 mg  tablet      Clonazepan

10 cc liquid       Carbamazepine

Midday (3 PM)

1 mg  tablet      Clonazepan

10 cc liquid       Carbamazepine

Evening (11 PM)

1.5 mg  tablet   Clonazepan

15 cc liquid       Carbamazepine

1.5 tablets         Warfarin

2 cans of formula, twice a day for a total of 4 cans.  Pump speed of 60-80 ml per hour, dose of 450 ml.  Flush tube often with water with a syringe.  Extra water is run though feeding tube lines and the end of each does.  Before each dose of food a syringe should be used to check for residuals by connecting a large syringe to the feeding tube and drawing book (or attempting to).  If a lot of food easily comes back than either wait a while longer or start the food at a slower rate.  If Mikie gurgles then it could be a sign that he is full or possibly over hydrated.

(I say this because sometimes we forget that it can happen, as it did today while he was at Rich and Nora’s house.)